Special
Kids, Special Diet
by
Heidi
Horner
When their
child is diagnosed with autism, parents often find they must begin
a new career as a researcher. Feeling immense pressure to find the
best treatment, if not outright cure, for their little one, they
slog through swamps of good information and pseudoscience, searching
for anything that might help. Parents quickly learn that because
each child with autism is as different from her peers on the spectrum
as she is from those who are developing "typically," there
is no single right treatment. What works for most may not work for
a particular individual. Parents of newly diagnosed children, especially,
are willing to try almost anything.
Most parents
line up conventional therapies for their children, like Applied
Behavioral Analysis and speech, occupational, and physical therapy,
according to each child's needs. Many also choose to explore other
treatment options, some of which are not scientifically proven,
but may have a great deal of anecdotal evidence to support them.
One such treatment is the gluten-free, casein-free diet.
Bryan Jepson,
MD, author of Changing the Course of Autism: A Scientific Approach
for Parents and Physicians, states that between 70 and 80 percent
of children with autism have gastrointestinal symptoms such as diarrhea,
abdominal pain, and constipation. He claims "There is also
evidence of a strong gut-brain link in autism, in which case treating
the GI disease would have a direct effect on the brain." As
Stephen Shore explains in his book, Understanding Autism for Dummies,
the basic idea behind the GF/CG diet is that some children with
autism may have food sensitivities and other digestive issues that
contribute to (some say cause) autism symptoms.
The most foods
most likely to cause these reactions are thought to be casein (a
milk protein), and gluten (a protein found in wheat, rye, barley,
and some other grains). When these foods are scrupulously avoided
over a period of weeks or months, many children seem to improve,
some only slightly, others dramatically. According to Shore, parents
usually report improvements in speech and behavior, common weak
areas for kids on the spectrum. For some children, however, the
GF/CF diet seems to have no effect.
The GF/CF diet
is the subject of ongoing studies, but at present there is no reliable
way to predict how well or for whom it is likely to work. While
tests for food sensitivities do exist, they are not always covered
by insurance, and some claim they don't necessarily predict how
a child will react to the diet. Most interested families simply
choose to try the diet for several months and assess its efficacy
for themselves.
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Many parents
are astonished to learn how many products contain traces of gluten
or casein. These ingredients can be hidden in such unlikely foods
as "non-dairy" cheeses, various condiments and sauces,
and even hot dogs, not to mention medications, and non-food items
like play dough or paste. Careful study of ingredient labels, if
it wasn't a habit already, becomes a way of life. Restaurants menus
can be incredibly tricky; parents often find themselves interrogating
servers about food preparation. Natural food stores, or the health
food section at the supermarket, quickly become familiar terrain.
It takes some
serious adjusting of the typical American diet to avoid casein and
gluten. However, parents may also find that many of their family
favorites are already wheat and dairy free, or can easily be adapted.
Meatballs and marinara sauce can be served over brown rice pasta,
for example, or chili may be enjoyed with a side of cornbread made
with rice flour in place of wheat. This is where a good cookbook
geared toward the GF/CF diet is invaluable. There will inevitably
be some disappointments and even disasters when trying new recipes
and products, but there are also plenty of pleasant surprises waiting
to be found.
In the beginning,
the GF/CF diet may feel like a major lifestyle change. Parents considering
it will be happy to know that there are excellent resources available
both locally and online for families who feel their children might
benefit from the diet. Most of these resources will be useful to
families whose children have other special dietary needs, like celiac
disease, wheat or dairy allergies, or who are on the Feingold diet
for ADHD.
Heidi
Horner is a birth and postpartum doula and mother of two living
in Spotsylvania.
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