joomla counter

allergy partners mar

sign up eletters



Pouches' Community Corner

The 5th Annual Jacey’s Walk for Williams Syndrome Awareness will be held at the Ron Rosner YMCA on Saturday, May 14, from 10:00 a.m. to 3:00 p.m. The walk is brief and is followed by a fun-filled family day. There will be music by DJ Cathy Lynn, as well as food, a silent auction, face painting, a bake sale, children’s activities and more!

What is Williams Syndrome? That’s what Jacey’s mom asked after the diagnosis when Jacey was just a year old. Williams Syndrome is diagnosed when there is a DNA deletion on chromosome 7. Williams Syndrome occurs in about 1 in 50,000 births, is not preventable and has no cure. People with Williams Syndrome often exhibit autistic-like behaviors and some are dual diagnosed with autism. These individuals differ from the typical autistic individual because they also often have heart disease or cardiovascular abnormalities, kidney and bladder disease, high blood pressure, elevated calcium levels and are very sociable.

Jacey, now 5, has all of the above along with visual impairment, neurological disorders, epilepsy and gastrointestinal difficulties. She’s an absolute joy to all that know her and a true blessing to her entire family.

All proceeds from the event go to the Williams Syndrome Association, the most comprehensive resource for people and families living with Williams Syndrome. Through Jacey’s Walk, her family has been able to connect with at least one new local family each year that has a child diagnosed with Williams Syndrome. To them, finding others to connect and offer support to makes it all worthwhile.

User Rating: 5 / 5

Star ActiveStar ActiveStar ActiveStar ActiveStar Active
 

Pouches' Community Corner

St Baldrick’s Foundation began in 2000 over a simple idea – shave a colleague’s beautiful hair while also raising money for kids with cancer. And now this Foundation has funded over $200 million worth of research to cure pediatric
cancer. In 2015, the FDA approved a treatment that offers a higher chance of a cure for high-risk neuroblastoma patients because of that research.

Pouches St Baldricks

Read more...