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Guests and Ghosts

ready for 2015Wow, 2015! I'm not even sure what to say, except the usual, time passes so quickly! January is always significant to my family because it marks the month when my son Roger was officially diagnosed with autism. Honestly I can't tell you the precise date. I just know it was in January that we went back to the doctor and I just sat there stunned.

Not stunned at the diagnosis. Heck we had even said to each other in the elevator we knew what was coming. It really was more of an I told you so moment for us. You see we already knew. We had known for years. But getting the doctors on board was a little tricky. As my long-time readers know I can be a little pushy. I refuse to give up and eventually we came by chance across a doctor who said, "I think your right, would you like a referral for testing at the autism center?"

Crazy, right? What's really crazy was the referring doctor was from the concussion center. We went to see her after a car accident where Roger suffered a moderate concussion. We were not even there for anything autism-related. She just picked up on some signs in her testing and that was it. Two years of being sent all over the hospital and the concussion doctor says "I'm pretty sure your kid is autistic." That's all it took. This was in August and by December we were in for testing and in January of 2011 we finally heard what we knew: Roger is autistic.

At first I did kind of go, What? Did I hear that right? At the same time I also took a huge breath. Now we knew for sure. Now we had a plan. Now we had direction. Trust me, after spending the several years having doctors find and look closer at a heart condition (very mild, no worries there yet), find a cyst in his brain (we had to wait and see what it was), and a movement disorder just to name a few things; autism, we could do that.

You see autism was not our greatest fear. When you sit in a doctor's office and have a neurologist say, "There is a cyst in his brain, but we don't know what it is, we need more testing. We need to see if it lights up." Then you wait for the tests, then you wait again for the results. Luckily for us it was ok. Just your normal everyday cyst in a brain...really that's what they told me. So yes I had been in scarier places.

I'm not going say autism has been easy. Far from it. It is a bumpy road. But I guess I'm trying to change the perception a little that autism is not something to fear. It is a lot of hard work for all involved but there are also very rewarding times. Like recently when Roger came home, ecstatic that he got a 93 on a Latin assignment. He has really struggled in that class and he yet he pulled off a 93. Sure there are hard parts. There a really hard parts, but there are also a lot of good parts.

In 2015 I just want people to stop always looking at the bad. Always looking at the struggles, while ignoring the progress. I heard someone say it or I saw it written somewhere: If you always look at who someone might be in the future you miss who they are today.

 

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